Reflex Sympathetic Dystrophy Syndrome
Complex Regional Pain Syndrome
RSD(S)-CRPS Advisory
Complex Regional Pain Syndrome
RSD(S)-CRPS Advisory
Welcome! An RSD(S)-CRPS Advisory Introduction
An RSD(S)/CRPS Advisory Introduction
RSD-CRPS Advisory is an information, guidance support, resource
and research friendly adversaria relating to RSD(S)/CRPS, Reflex
Sympathetic Dystrophy Syndrome, known also as, Complex
Regional Pain Syndrome. Having been diagnosed myself in 2003,
it has become my passion to promote awareness and offer
support to others like me, to their families and friends so that
they too might learn about this chronic neurological pain disorder
and the debilitating outcome many of us face.
A support system is necessary to achieve the best possible future
for both the patient, survivor and their families.
and research friendly adversaria relating to RSD(S)/CRPS, Reflex
Sympathetic Dystrophy Syndrome, known also as, Complex
Regional Pain Syndrome. Having been diagnosed myself in 2003,
it has become my passion to promote awareness and offer
support to others like me, to their families and friends so that
they too might learn about this chronic neurological pain disorder
and the debilitating outcome many of us face.
A support system is necessary to achieve the best possible future
for both the patient, survivor and their families.
| Previously and currently accessible at: www.RSDAdvisor.com and www.RSDAdvisory.com: And now additionally known as RSD-CRPS Advisory or www.CRPSAdvisory.com |
 | Your MySpace Support Group: http://Groups.MySpace.com/RSDAdvisory | |
| RSD(S)/CRPS / RSDCRPSFire: http://www.MySpace.com/twinklev | |
| Authors Diversified Personal Pages: http://360.Yahoo.com/RSDCRPSFire | |
| RSD Advisory @ WordPress: http://RSDAdvisory.WordPress.com | |
Fighting the Fire, finding the cure (Overview)
Through continuous research we strive to locate the newest clinical trials, medication
reviews, workers compensation laws, information valuable to injured workers and
dozens of other websites dedicated with you in mind. Together we strive for the
same outcome. The same wish! A cure to make our hopes and dreams come true.
reviews, workers compensation laws, information valuable to injured workers and
dozens of other websites dedicated with you in mind. Together we strive for the
same outcome. The same wish! A cure to make our hopes and dreams come true.
We want to hear from you! (A Little About What We Do)
We want to hear from you. We want to provide you a place tell the world about your
suffering, pain, and day to day survival. We want to know about you, your stories.
We're eager to share them. From the chronic pain that altered your life, to your
hardships, to your happier days and also your sadder ones, your depression and your
hope, your spirit and your fight!
suffering, pain, and day to day survival. We want to know about you, your stories.
We're eager to share them. From the chronic pain that altered your life, to your
hardships, to your happier days and also your sadder ones, your depression and your
hope, your spirit and your fight!
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| We have all been united by a single common denominator and that is... Pain" ©twinklev/rsdcrpsfire |
| Featuring |
| Please help us Continue to help you! Your gift of a $2 dollar contribution would be gratefully appreciated. Thank you for your consideration, even if you cannot contribute at this time. |
It is the objective of RSDChat.org to provide a great place for people with RSD/CRPS as well as
their friends and family to meet together to discuss coping strategies, treatment options & other
important things.
their friends and family to meet together to discuss coping strategies, treatment options & other
important things.
7:00PM EST & from 10:00PM - 11:00PM EST.
Please make an effort to join in during these times so we can all talk together!
(Want to see our meeting times in another Time Zone? Click here)
You can contact Laura, the site Manager at: Laura@rsdchat.org
Please make an effort to join in during these times so we can all talk together!
(Want to see our meeting times in another Time Zone? Click here)
You can contact Laura, the site Manager at: Laura@rsdchat.org
RSD(S)-CRPS Advisory urges you all to join RSDChat.org. It is important that we all have a
home to be apart of. While many of us are online often as a diversion to our pain, making new
friends and trying to find others like us who experience chronic pain, the owner of RSD Chat has
done a wonderful thing in providing us with this online realm to meet, gather and discuss.
Instead of us becoming spread out in the world, we can come together in a single place. A single
online home! I hope to meet each of you there!
home to be apart of. While many of us are online often as a diversion to our pain, making new
friends and trying to find others like us who experience chronic pain, the owner of RSD Chat has
done a wonderful thing in providing us with this online realm to meet, gather and discuss.
Instead of us becoming spread out in the world, we can come together in a single place. A single
online home! I hope to meet each of you there!
| © 2005-2009 Twinkle VanFleet, RSDAdvisor, RSDAdvisory and CRPSAdvisory.com All rights reserved on all personal content including but not limited to- graphics, essays and articles. May be used by permission and credit to source. All other content published in this site remains the property and copyright of the owner's that they belong to. We take no credit for the articles,, but are pleased to be allowed to use them. We thank you! |
| RSD UPWORD- "Understanding Pain with Openness, Research & Determination" |
The Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) was founded in 1984 to promote public
and professional awareness of Reflex Sympathetic Dystrophy (RSD), also known as Complex Regional Pain
Syndrome (CRPS). Our website is designed to give patients, family members, and healthcare professionals the
stories. RSDSA does not accept advertising for this website. This summary is from the RSDSA website.
We believe in RSDSA as one of the oldest and most knowledgeable of all. We thank them for all the difference
they have made since being born in 1984, 24 years now. They have never given up on us. They have continued
to teach us, and you, professionally and compassionately. Thank you again RSDSA!
and professional awareness of Reflex Sympathetic Dystrophy (RSD), also known as Complex Regional Pain
Syndrome (CRPS). Our website is designed to give patients, family members, and healthcare professionals the
stories. RSDSA does not accept advertising for this website. This summary is from the RSDSA website.
We believe in RSDSA as one of the oldest and most knowledgeable of all. We thank them for all the difference
they have made since being born in 1984, 24 years now. They have never given up on us. They have continued
to teach us, and you, professionally and compassionately. Thank you again RSDSA!
| Medical Abbreviations | |
|
We GoodSearch for Reflex Sympathetic Dystrophy Syndrome Association - RSDSA ID: 509841 our
chosen charity which is a Non-Profit Organization dedicated to finding us a cure through donations
and grants for new and ongoing research. Using GoodSearch as your search engine benefits each of us
struggling with RSDS/CRPS. While we provide several search engines to suit your needs, please use
the GoodSearch, too! Thank you! ~Twinkle V.
chosen charity which is a Non-Profit Organization dedicated to finding us a cure through donations
and grants for new and ongoing research. Using GoodSearch as your search engine benefits each of us
struggling with RSDS/CRPS. While we provide several search engines to suit your needs, please use
the GoodSearch, too! Thank you! ~Twinkle V.
The four of us are just kids, kids with something horrible Reflex Sympathetic Dystrophy (RSD) otherwise
known as Chronic Regional Pain Syndrome (CRPS). RSD/CRPS is a nasty nerve disorder that makes our lives
complete chaos. It effects tons of people, yet no one knows about it. We don't blame you for not knowing but
We aim to change that. We're out for awareness and we need your help to get it. We're all young, having started
this myspace when we were all 15 but we believe in change. Try and learn about the disease, or if you have it
feel free to use us as a support site, we're pretty social :D. It's our goal to make the "Invisible Disorder" not so
invisible anymore. (These are the very words of the author(s) of FightRSD)
Site Opperators: Anabel 16, MI, Ashley 16, CA, Kara 17, FL, Nikki 16, NY
FightRSD should be commended for their courage. Our children are our future and they fight to make a brighter
future for all of us. We thank you!
known as Chronic Regional Pain Syndrome (CRPS). RSD/CRPS is a nasty nerve disorder that makes our lives
complete chaos. It effects tons of people, yet no one knows about it. We don't blame you for not knowing but
We aim to change that. We're out for awareness and we need your help to get it. We're all young, having started
this myspace when we were all 15 but we believe in change. Try and learn about the disease, or if you have it
feel free to use us as a support site, we're pretty social :D. It's our goal to make the "Invisible Disorder" not so
invisible anymore. (These are the very words of the author(s) of FightRSD)
Site Opperators: Anabel 16, MI, Ashley 16, CA, Kara 17, FL, Nikki 16, NY
FightRSD should be commended for their courage. Our children are our future and they fight to make a brighter
future for all of us. We thank you!
I urge you to support "Fight RSD!"
and ours too.
We need you!
Please join the cause and support the
cause, tell your family and your friends,
boards, message boards. It only takes a
few minutes to help make a difference.
and ours too.
We need you!
Please join the cause and support the
cause, tell your family and your friends,
boards, message boards. It only takes a
few minutes to help make a difference.
 |
ChronicPainStore.com “In trying to help myself, I found that the world of pain relief products can be confusing and frustrating,” says Dr. Hanna. “Our goal with The Chronic Pain Store is to cut through the jumble of conflicting claims and false promises and give people a selection of products they can count on.” |
Sandy needs your help, she needs to raise funds for surgery and related necessities
to lead a better life. I urge you to extend a helping hand. At her RSD Awareness Site,
you will find novelties all related to RSD Awareness. T-shirts, hats, mugs, tank tops,
tote bags, hoodies, tracksuits, travel mugs and more! She needs to raise several
thousands of dollars for a Spinal Cord Stimulator. Please support her efforts.
You can find her at:
Sandy's Myspace Sandy's jcooldesignz @ Myspace
Sandy's Life with RSD @ Blogspot
Sandy's Store @ Cafepress
JCool Designz.com : RSD AWARENESS
to lead a better life. I urge you to extend a helping hand. At her RSD Awareness Site,
you will find novelties all related to RSD Awareness. T-shirts, hats, mugs, tank tops,
tote bags, hoodies, tracksuits, travel mugs and more! She needs to raise several
thousands of dollars for a Spinal Cord Stimulator. Please support her efforts.
You can find her at:
Sandy's Myspace Sandy's jcooldesignz @ Myspace
Sandy's Life with RSD @ Blogspot
Sandy's Store @ Cafepress
JCool Designz.com : RSD AWARENESS
Shepherd of Hope Christian Chat & Chronic Illness Support
They have, but are not limited to: Sunday Praise & Worship (3 pm EST), Wednesday Bible Study
(7 pm EST), Daily Prayer (11 am EST) and regular open chatting 24/7, hosted chats and guest
speakers. They also offer PAGES of help for coping skills, pampering skills, scripture reading,
simple recipes, contests, videos and links and SO MUCH MORE!
www.shepherdofhope.org
They have, but are not limited to: Sunday Praise & Worship (3 pm EST), Wednesday Bible Study
(7 pm EST), Daily Prayer (11 am EST) and regular open chatting 24/7, hosted chats and guest
speakers. They also offer PAGES of help for coping skills, pampering skills, scripture reading,
simple recipes, contests, videos and links and SO MUCH MORE!
www.shepherdofhope.org
_______________________________________________________________________________
________________________________________________________________________________
________________________________________________________________________________
________________________________________________________________________________
| ****************************** |
Please help me support theses "Causes". We need you and you're
saving lives by supporting us. By doing so, you might be saving my
life too and for that, I thank you. ~Sincerely, Twinkle V.
saving lives by supporting us. By doing so, you might be saving my
life too and for that, I thank you. ~Sincerely, Twinkle V.
A community of patients, family members and friends dedicated to
dealing with Reflex Sympathetic Dystrophy, together.
I have reviewed this site and find it to be a valuable resource. I hope to see you
there. ~Twinkle (rsdcrpsfire)
dealing with Reflex Sympathetic Dystrophy, together.
I have reviewed this site and find it to be a valuable resource. I hope to see you
there. ~Twinkle (rsdcrpsfire)
| Funding for RSD Research Please sign the petition |
________________________________________________________________________________
________________________________________________________________________________
- The most comprehensive RSD/CRPS related Directory available online.
Included in this site but not limited to are RSD Sites, Chronic Pain, Drug Information,
Medical Information Sites, Pain Measurement Resources, Professional Associations,
Government and/or Research Organizations, Pharmaceutical Companies, Technical
Information, Relevant Medical Journals, Pain Researchers and Clinicians, Americans with
Disabilities Act and much more!
- I personally recommend this site as a definite must see!
________________________________________________________________________________
________________________________________________________________________________
- Petition to Congress for RSD Awareness Day
I would be grateful for anyone who takes the time to sign this petition.
It is a petition to Congress. If you would please pass or forward this to
your friends and family in emails or otherwise, I would feel even more
blessed. Thank you!
________________________________
For more information regarding the goal and description please visit
________________________________
For more information on Reflex Sympathetic Dystrophy (RSD/CRPS),
please visit RSD @ NeurologyChannel
________________________________________________________________________________
________________________________________________________________________________
| Pain Management Class 2009 |
| Thank you Denise @ MDJ And to the Owners of How to Cope with Pain |