Reflex Sympathetic Dystrophy Syndrome
Complex Regional Pain Syndrome
RSD(S)-CRPS Advisory
Complex Regional Pain Syndrome
RSD(S)-CRPS Advisory
An RSD(S)-CRPS Advisory Introduction
| Thank you for your support- I hope you find what you're looking for. |
RSD-CRPS Advisory is an information, guidance, support, resource
and research friendly adversaria relating to RSD(S)/CRPS, Reflex
Sympathetic Dystrophy Syndrome, known also as, Complex Regional
Pain Syndrome. Having been diagnosed myself in 2003, having a
permanent Spinal Cord Stimulator implanted in 2006, having had
several Lumbar Sympathetic Nerve Blocks and having graduated from
the Compass Center for Functional Restoration on July 17, 2009 in
Sacramento California it continues to be my passion to promote
awareness and offer support to others like me, to their families and
friends so that they too might learn about this chronic neurological
pain disorder and the debilitating outcome many of us face without
the tools and coping strategies needed to survive.
A support system is necessary to achieve the best possible future for
both the patient, survivor and their families.
| Previously and currently accessible at: www.RSDAdvisor.com and www.RSDAdvisory.com: And now additionally known as RSD-CRPS Advisory or www.CRPSAdvisory.com |
 | MySpace Support Group: http://Groups.MySpace.com/RSDAdvisory | |
| RSD(S)/CRPS / RSDCRPSFire: http://www.MySpace.com/twinklev | |
| RSDCRPSFire @ Twitter: http://twitter.com/rsdcrpsfire | |
| RSD Advisory @ WordPress: http://RSDAdvisory.WordPress.com | |
Fighting the Fire, finding the cure (Overview)
Through continuous research we strive to locate the newest clinical trials, medication
reviews, workers compensation laws, information valuable to injured workers and
dozens of other websites dedicated with you in mind. Together we strive for the
same outcome. The same wish! A cure to make our hopes and dreams come true.
reviews, workers compensation laws, information valuable to injured workers and
dozens of other websites dedicated with you in mind. Together we strive for the
same outcome. The same wish! A cure to make our hopes and dreams come true.
We want to hear from you! (A Little About What We Do)
We want to hear from you. We want to provide you a place tell the world about your
suffering, pain, and day to day survival. We want to know about you, your stories.
We're eager to share them. From the chronic pain that altered your life, to your
hardships, to your happier days and also your sadder ones, your depression and your
hope, your spirit and your fight!
suffering, pain, and day to day survival. We want to know about you, your stories.
We're eager to share them. From the chronic pain that altered your life, to your
hardships, to your happier days and also your sadder ones, your depression and your
hope, your spirit and your fight!
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| |
 |
| We have all been united by a single common denominator and that is... Pain" ©twinklev/rsdcrpsfire |
| Featuring |
| Please help us Continue to help you! Your gift of a $2 dollar contribution would be gratefully appreciated. Thank you for your consideration, even if you cannot contribute at this time. |
It is the objective of The Jabber Box to provide a great place for people with RSD/CRPS as well
as their friends and family to meet together to discuss coping strategies, treatment options &
other important things.
as their friends and family to meet together to discuss coping strategies, treatment options &
other important things.
RSD(S)-CRPS Advisory urges you all to join MD Junction It is important that we all have a home
to be apart of. While many of us are online often as a diversion to our pain, making new friends and
trying to find others like us who experience chronic pain, the owner of MD Junction has done a
wonderful thing in providing us with this online realm to meet, gather and discuss. Instead of us
becoming spread out in the world, we can come together in a single place. A single online home! I
hope to meet each of you there! A newer Group Medical Marijuana Patients Support Group run by
Angela and Lisa is a valuable source for alternative medicine.
to be apart of. While many of us are online often as a diversion to our pain, making new friends and
trying to find others like us who experience chronic pain, the owner of MD Junction has done a
wonderful thing in providing us with this online realm to meet, gather and discuss. Instead of us
becoming spread out in the world, we can come together in a single place. A single online home! I
hope to meet each of you there! A newer Group Medical Marijuana Patients Support Group run by
Angela and Lisa is a valuable source for alternative medicine.
| © 2005-2009 Twinkle VanFleet, RSDAdvisor, RSDAdvisory and CRPSAdvisory.com All rights reserved on all personal content including but not limited to- graphics, essays and articles. May be used by permission and credit to source. All other content published in this site remains the property and copyright of the owner's that they belong to. We take no credit for the articles,, but are pleased to be allowed to use them. We thank you! |
| RSD UPWORD- "Understanding Pain with Openness, Research & Determination" |
The Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) was founded in 1984 to promote public
and professional awareness of Reflex Sympathetic Dystrophy (RSD), also known as Complex Regional Pain
Syndrome (CRPS). Our website is designed to give patients, family members, and healthcare professionals the
stories. RSDSA does not accept advertising for this website. This summary is from the RSDSA website.
We believe in RSDSA as one of the oldest and most knowledgeable of all. We thank them for all the difference
to teach us, and you, professionally and compassionately. Thank you again RSDSA!
and professional awareness of Reflex Sympathetic Dystrophy (RSD), also known as Complex Regional Pain
Syndrome (CRPS). Our website is designed to give patients, family members, and healthcare professionals the
stories. RSDSA does not accept advertising for this website. This summary is from the RSDSA website.
We believe in RSDSA as one of the oldest and most knowledgeable of all. We thank them for all the difference
to teach us, and you, professionally and compassionately. Thank you again RSDSA!
| Medical Abbreviations | |
|
We GoodSearch for Reflex Sympathetic Dystrophy Syndrome Association - RSDSA ID: 509841 our
chosen charity which is a Non-Profit Organization dedicated to finding us a cure through donations
and grants for new and ongoing research. Using GoodSearch as your search engine benefits each of us
struggling with RSDS/CRPS. While we provide several search engines to suit your needs, please use
the GoodSearch, too! Thank you! ~Twinkle V.
chosen charity which is a Non-Profit Organization dedicated to finding us a cure through donations
and grants for new and ongoing research. Using GoodSearch as your search engine benefits each of us
struggling with RSDS/CRPS. While we provide several search engines to suit your needs, please use
the GoodSearch, too! Thank you! ~Twinkle V.
The four of us are just kids, kids with something horrible Reflex Sympathetic Dystrophy (RSD) otherwise
known as Chronic Regional Pain Syndrome (CRPS). RSD/CRPS is a nasty nerve disorder that makes our lives
complete chaos. It effects tons of people, yet no one knows about it. We don't blame you for not knowing but
We aim to change that. We're out for awareness and we need your help to get it. We're all young, having started
this myspace when we were all 15 but we believe in change. Try and learn about the disease, or if you have it
feel free to use us as a support site, we're pretty social :D. It's our goal to make the "Invisible Disorder" not so
invisible anymore. (These are the very words of the author(s) of FightRSD)
Site Opperators: Anabel 16, MI, Ashley 16, CA, Kara 17, FL, Nikki 16, NY
FightRSD should be commended for their courage. Our children are our future and they fight to make a brighter
future for all of us. We thank you!
known as Chronic Regional Pain Syndrome (CRPS). RSD/CRPS is a nasty nerve disorder that makes our lives
complete chaos. It effects tons of people, yet no one knows about it. We don't blame you for not knowing but
We aim to change that. We're out for awareness and we need your help to get it. We're all young, having started
this myspace when we were all 15 but we believe in change. Try and learn about the disease, or if you have it
feel free to use us as a support site, we're pretty social :D. It's our goal to make the "Invisible Disorder" not so
invisible anymore. (These are the very words of the author(s) of FightRSD)
Site Opperators: Anabel 16, MI, Ashley 16, CA, Kara 17, FL, Nikki 16, NY
FightRSD should be commended for their courage. Our children are our future and they fight to make a brighter
future for all of us. We thank you!
I urge you to support "Fight RSD!"
and ours too.
We need you!
Please join the cause and support the
cause, tell your family and your friends,
boards, message boards. It only takes a
few minutes to help make a difference.
and ours too.
We need you!
Please join the cause and support the
cause, tell your family and your friends,
boards, message boards. It only takes a
few minutes to help make a difference.
They have, but are not limited to: Sunday Praise & Worship (3 pm EST),
Wednesday Bible Study (7 pm EST), Daily Prayer (11 am EST) and regular
open chatting 24/7, hosted chats and guest speakers. They also offer PAGES
of help for coping skills, pampering skills, scripture reading, simple recipes,
contests, videos and links and SO MUCH MORE!
www.shepherdofhope.org
_______________________________________________________________________________
________________________________________________________________________________
________________________________________________________________________________
________________________________________________________________________________
| ****************************** |
Please help me support theses "Causes". We need you and you're
saving lives by supporting us. By doing so, you might be saving my
life too and for that, I thank you. ~Sincerely, Twinkle V.
saving lives by supporting us. By doing so, you might be saving my
life too and for that, I thank you. ~Sincerely, Twinkle V.
A community of patients, family members and friends dedicated to dealing with
Reflex Sympathetic Dystrophy, together.
As one of your Group Leaders, I hope to see you there.. ~Twinkle (rsdcrpsfire)
Reflex Sympathetic Dystrophy, together.
As one of your Group Leaders, I hope to see you there.. ~Twinkle (rsdcrpsfire)
| Funding for RSD Research Please sign the petition |
________________________________________________________________________________
________________________________________________________________________________
- The most comprehensive RSD/CRPS related Directory available online.
Included in this site but not limited to are RSD Sites, Chronic Pain, Drug Information,
Medical Information Sites, Pain Measurement Resources, Professional Associations,
Government and/or Research Organizations, Pharmaceutical Companies, Technical
Information, Relevant Medical Journals, Pain Researchers and Clinicians, Americans
with Disabilities Act and much more!
- I personally recommend this site as a definite must see!
________________________________________________________________________________
________________________________________________________________________________
- Petition to Congress for RSD Awareness Day
I would be grateful for anyone who takes the time to sign this petition.
It is a petition to Congress. If you would please pass or forward this to
your friends and family in emails or otherwise, I would feel even more
blessed. Thank you!
________________________________
For more information regarding the goal and description please visit
________________________________
For more information on Reflex Sympathetic Dystrophy (RSD/CRPS),
please visit RSD @ NeurologyChannel
________________________________________________________________________________
________________________________________________________________________________
| Pain Management Class 2009 |
| Thank you Denise @ MDJ And to the Owners of How to Cope with Pain |
The Purple Heart Project raises money for the annual “USC Quench The Fire Event”
sponsoring RSD (Reflex Sympathetic Dystrophy a.k.a. Complex Regional Pain
Syndrome) medical research.
Please support them by doing so we are support ourselves. Thank you! ~Twinkle
sponsoring RSD (Reflex Sympathetic Dystrophy a.k.a. Complex Regional Pain
Syndrome) medical research.
Please support them by doing so we are support ourselves. Thank you! ~Twinkle
This image was created by my 12 year old son Kurtis.
I'm proud to display it.
I love you, Kurtis!
I'm proud to display it.
I love you, Kurtis!
"I will walk... when I cannot
walk, I will carry myself,
when I cannot carry myself...
I will fly!"
Written while attending Compass Center for
Functional Restoration. © 2009
twinklev/rsdcrpsfire
walk, I will carry myself,
when I cannot carry myself...
I will fly!"
Written while attending Compass Center for
Functional Restoration. © 2009
twinklev/rsdcrpsfire
________________________________________________________________________________
________________________________________________________________________________
If you would like to link to
us by graphic, please use
the image above. Resize as
needed.
us by graphic, please use
the image above. Resize as
needed.
